[4:26] What is PANS or PANDAS and how Scott became involved
[8:24] Difference in symptoms between PANS and PANDAS
[13:27] The tests used to diagnose PANS or PANDAS
[17:53] The Cunningham Panel
[25:55] How to treat these kids with PANS or PANDAS
“PANDAS is Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep infection. These kids will get an infection with strep and then, afterward, sometimes months afterward, will have severe sudden onset OCD.”
“PANS can be from other infections. It can be from toxins in the environment, so man made toxins or mycotoxins from mold exposure; there’s a big tie-in. Or it can be from infections. So PANDAS is from stress, and it is actually a subtype from PANS.”
“Very interestingly, the original papers written in 2014 have a little tiny sentence in there that said, ‘Stress may be an initiator of a flare of PANS in some children.’”
“The simple answer is 0, none… it’s a clinical diagnosis meaning there are signs and symptoms… There’s just a list. It’s a list of things and in the case of PANS or PANDAS, it’s the sudden onset of severe OCD or restrictive eating or both, plus seven other categories.”
“The Cunningham Panel, we’ve known for years that you can actually measure the antibodies to the brain tissue, they’re called anti-neuralgic antibodies. The Cunningham Panel actually tests for about 4 of those anti-neuralgic antibodies.”
“The first thing we do is identify exactly what’s going on clinically and talk to the parents… it really is an amazing feeling for them to feel like someone is actually listening to them and not just telling them your child has diagnosis X and here is the medication for it.”
“The 2nd step is reducing things that negatively impact their health, so that’s where we start with diet, we start with stress reduction, reducing sympathetic overdrive, things like that.”
How to connect with Dr. Scott
Facebook: Healing PANS and PANDAS
Dr. Scott Antoine completed his undergraduate training at the University of Scranton in Pennsylvania, after which he completed his doctorate at the Philadelphia College of Osteopathic Medicine.
In addition to his board certification in Emergency Medicine, he achieved board certification in Integrative Medicine through the newly formed American Board of Integrative Medicine in 2016.
I will let him tell you his story but His daughter developed Pediatric Acute-onset Neuropsychiatric Syndrome or PANS in 2013. He and his wife Ellen, also a Functional and Integrative Medicine physician, were able to bring her to full recovery. Afrter that he knew his specialty had found him.
Since then, he has refined his process and has helped hundreds of children recover from PANS and PANDAS. In 2019, he successfully lobbied the Indiana legi-slature and helped pass a law which prohibits insurance companies in Indiana from denying coverage for medical care (including IVIG) for children with PANS and PANDAS.
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